Supporting a parent means sharing the everyday load
The Surgeon General’s 2024 advisory asked families and communities to support parents. Our takeaway: a useful offer names a task, a time and someone who will follow through.
Observations. Evidence. Ideas.
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News, observations, and practical ideas for people who support care. Explore what is changing and what it means for your community.
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- Caregiving & family life Selected
- The everyday experience of giving and receiving care: family relationships, changing roles, practical support, and time for yourself. We explore what helps care fit into a full life.
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- Friendship, shared purpose, creativity, volunteering, and welcoming places to gather. We explore how people feel known, contribute in ways they choose, and enjoy life together, and what makes participation possible.
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- Communication, shared care plans, and changes between home, hospital, and community support. We explore what helps people stay informed and involved as care needs change.
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- Supporting staff, listening to participants, coordinating programs, and sustaining services. We explore the everyday decisions that help organizations serve people well.
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- Digital tools, accessibility, privacy, and thoughtful uses of AI. We explore where technology can help, with human relationships, choice, and judgment guiding its use.
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- Changes in care policy, funding, research, and service delivery. We consider what these developments could mean for people, families, and the organizations supporting them.
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Matching articles
222 articles · Page 14 of 19
A care plan should include the caregiver
The 2024 launch of Medicare’s GUIDE model put caregiver support alongside dementia care. Our takeaway: a useful plan should make room for the person giving care, too.
Accessibility belongs in the purchasing conversation
The 2024 ADA Title II digital-access rule makes accessibility a purchasing and service responsibility. A supplier’s product should be examined through the tasks people need to complete.
Test the invitation before you send it
An invitation can be accurate and still be hard to use. Review the words, format, and practical next step with the people it is meant to reach before sending it widely.
The first home visit begins before the doorbell
A first visit is easier to prepare for when the person knows who is coming and what has been agreed. NICE’s home-care guidance prompts teams to think about introductions, practical expectations and the person's priorities before a new worker arrives.
The person can disagree with the summary
A summary may turn a temporary request into a lasting assumption. Research on people’s experiences of their health records prompts a practical question: how can someone correct the account and hear what changed?
You can be in a crowd and still feel disconnected
A busy calendar does not tell the whole story of connection. We explore how community teams can look beyond attendance and ask what an activity feels like to the people taking part.
A recording needs an understood purpose
A recording can help a team remember, but people need to understand its purpose and choose how they participate. A health-system implementation prompts practical questions about capture, access, review, and alternatives.
A welcome needs to reach people who are often left out
A welcome is worth reviewing from the perspective of people it may overlook. CDC findings prompt questions about assumptions in invitations, respectful participation and ways to raise a concern.
Finding support when you are the only available family caregiver
Family Caregiver Alliance’s 2024 collection of personal stories makes room for experiences that are often hidden. Our perspective: being the only available relative should be a starting point for finding support, not an assumption that everything must stay with you.
Make the volunteer role a promise you can keep
Volunteers need a role that fits their contribution, available time, and support. Leaders can clarify the commitment and the help behind it without relying on someone always giving a little more.
Share the context that fits the role
A care team needs useful information, and each recipient has a different job to do. HHS guidance on communication with family and friends prompts a practical discussion about purpose, the person's wishes and sharing relevant context through the right channel.