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Caregiver guide

Calmer Evenings

For families caring for someone with dementia · About 7 minutes to read

Follow one evening from mid-afternoon to the middle of the night, first the hard way, then with what helps. Open Explore to start.

For many people living with dementia, late afternoon into the night is the hardest stretch of the day. Restlessness, confusion or fear “can begin or worsen as daylight begins to fade,” often just when you are tired too.

It isn’t anyone’s fault, and much of it can be eased. This guide follows one evening, from mid-afternoon to the middle of the night, and shows what helps at each step. The 3D guide shows each moment twice: first what makes it harder, then what helps.

It’s common

At one memory clinic, 21% of patients had sundowning. Reviews report anywhere from 2.5% to 66%, depending on the setting.

It isn’t the sunset

Late-day distress “is not related to the actual time of sunset,” Dementia UK notes. Old routines, like the school run, can surface.

“I want to go home”

Wanting to go home, even when at home, is a sign of wandering risk. Six in 10 people living with dementia will wander at least once.

You lose sleep too

Across 35 studies, dementia caregivers lost 2.5 to 3.5 hours of sleep a week. Simple routines helped them sleep better.

The Afternoon Sets Up the Evening

What happens at five o’clock is shaped hours earlier. Too little daylight, a long late nap and coffee in the afternoon can all add to the restlessness that comes later.

What helps

  • Get outside, or sit by a window. “Exposure to bright light can help reset the person’s body clock,” the National Institute on Aging notes. A daily walk helps too.
  • Keep naps short and early: rest if she needs it, but “keep naps short and not too late in the day.”
  • Keep coffee, tea and cola to the morning, and skip alcohol, which can add to confusion and anxiety.
  • Plan the busy things early. Appointments, outings and bathing go in the morning or early afternoon, when she is most alert. A full day is tiring.
  • Give her something to do in the afternoon: folding towels, sorting, a familiar job.

When the Light Goes

Low light makes shadows that are easy to misread. A dark window reflects the room, and a person living with dementia “may see a reflection in a window and believe there is an intruder in their home.”

What helps

  • Lights on, curtains closed, before dusk. Dementia UK’s advice: “Close the curtains and turn the lights on before dusk to ease the transition into night-time.”
  • Keep the light even, with lamps in the corners and no deep shadows.
  • Cover or turn a mirror if reflections upset her.
  • If she sees someone who isn’t there, don’t argue. Ask what’s worrying her, sit close, and reassure her.

“I Want to Go Home”

Late in the day, old routines can surface: she may need to pick the children up from school, or get home from work. Home can be a feeling more than a place. “If they don’t recognise their environment as ‘home’ at that moment, then for that moment, it isn’t home,” the Alzheimer’s Society says.

Instead ofTry
“You are home!”“You miss the children. Tell me about them.” Answer the feeling first.
“The kids are all grown up.”Ask about the home or the people she means. Look at photos together.
Blocking the door.Walk with her for a bit, then suggest a cup of tea. A short walk together often helps.
Sounding impatient the tenth time.The same calm, kind answer. She may not remember asking before.

More on what to say in Words That Land.

A Quieter Evening

By supper she is tired. A big meal, the news on and people arriving home from work or school can add up to too much at once.

What helps

  • Serve the main meal at lunch, and keep supper light.
  • Turn the news off. A familiar show is fine, “but not the news or other shows that might be upsetting.”
  • Fewer people at once. Ask family to come in quietly and sit with her.
  • Check her needs: hunger, thirst, the toilet, pain, or being too warm or cold can look like restlessness.
  • Make it a quiet hour: soft familiar music, a simple task, or a family phone call at that time.

Bedtime and the Night

Waking in the dark, she may not know where she is or where the bathroom is. A sudden bright light and a raised voice can frighten her more.

What helps

  • The same bedtime and waking time every day, with calm activities before bed and a quiet house once she’s asleep.
  • Fewer drinks after supper, and plenty earlier in the day.
  • Light the way: night lights in the bedroom, hallway and bathroom, a clear path, and the bathroom door open with a picture of a toilet on it.
  • If she wakes upset, go to her calmly, gently tell her the time, and reassure her that everything is all right. Never restrain her.
  • A chime over the outside doors, or a monitor that signals when one opens.
  • Sleep medicine is a question for her doctor. Store-bought “PM” sleep aids with diphenhydramine can cause confusion and falls. Ask about melatonin, and about the timing of her other medicines.

Call her doctor the same day if her confusion suddenly gets worse. A sudden change can be delirium from an infection, such as a urinary tract infection.

Evening Notes

“Make notes about what happens before sundowning events and try to identify triggers,” the Alzheimer’s Association suggests. Log each hard evening here: when it started, what came just before, and what helped. Your demo notes are available while this page stays open. Copy or print them before you leave.

Evening notes

What happened this evening?

Kept while this page stays open

What came just before?

What helped?

    Your Evening Too

    The hard hour comes at the end of your day as well. Your calm carries: she picks up on stress in your body language. Rest when you can, ask family to call or take a shift at that hour, and forgive yourself the nights that go badly.

    Your Next Step

    Tonight, turn the lamps on and close the curtains before dusk, and start your Evening Notes. Bring them to her next doctor’s visit.

    Then watch one evening, start to finish, the hard way and with what helps.

    This guide offers general information, not medical advice. Every person is different, and what helps can change over time. Your loved one’s doctor or care team can help you decide what is right for them.

    Sources: National Institute on Aging, Tips for coping with sundowning · Alzheimer’s Association, Sleep issues and sundowning · Alzheimer’s Association, Sundowning tip sheet · Alzheimer’s Association, Wandering and getting lost · Alzheimer’s Association, Home safety tips · Alzheimer’s Association, Incontinence · Mayo Clinic, Sundowning: late-day confusion · MedlinePlus, Dementia: behavior and sleep problems · Alzheimer’s Society, Sundowning and dementia · Alzheimer’s Society, “I want to go home” · Alzheimer’s Society, Urinary tract infections and dementia · Dementia UK, Late day distress (sundowning) · Dementia UK, Changes in perception and hallucinations · Alzheimer Society of B.C., Late-day confusion · WRHA, “I want to go home” tip sheet · Choosing Wisely, sleep medicines in older adults · Toccaceli Blasi and others, 2023, sundowning at a memory clinic · Canevelli and others, 2016, sundowning review · Baylor University, Caregivers of people with dementia are losing sleep